https://medium.com/@Axonium_org/blockchain-and-the-consent-quandary-unconsented-de-identified-data-24aef443ce9f

Clinical data has been used for decades, and we’ve all benefited from it. Data is plentiful, and data is powerful. That makes data plenty powerful — that’s great news. Having worked in data analytics for years, I can attest the general observation is that the more detail you have in the data, the more insight you could gain from it.

That’s all well and good, but the flip side of that coin is that when it comes to health data, individual people are involved. Thereby, detailed granular health data translates to very sensitive, very personal information about very real people. People are naturally very private about their health journey, so there is certainly reluctance to share detailed information.